my story so far !!!!

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Well, here I go, my first blog.

It has been almost two years since I started this journey on the CKD route. It was not a pleasant start, but the staff at Salford Royal soon changed that and put me on the right road, which is straight ahead. No looking back. I was diagnosed with myeloma, and the para-proteins from this are blocking my kidneys, so no transplant for me. I am now PD, and Salford was referred to Oldham Royal for my myeloma, where I met another team of fantastic nurses and consultants. I was so cross at the whole world at the start and felt I just could not do this. The worst feeling was the loss of control over every aspect of my life. This took some getting used to.

Now, on the good side of all that’s happened, I have a whole new world of people who are friends and very supportive on any subject of my journey. Always there when needed most, and through all this, there has been my husband, Carl, who has loved me at my worst and held me at my weakest and whom I would have been lost without.

Hope this helps anyone out there with similar problems, and will continue to write about my story.

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