I was diagnosed with CKD almost 15 years ago. It came as a shock as I went to my GP with what I thought were the debilitating symptoms of a cold. Blood tests were taken, and I was contacted the day after by a concerned GP who had arranged for me to go to the hospital. Despite having no idea that I had been experiencing loss in kidney function, my kidney function had been recorded at 5% and this was unfortunately irreversible.
Following my admission to hospital I was prepared for starting dialysis. For the first 6 years I was on Peritoneal Dialysis (PD) and was very well. My need to dialyse didn’t stop me from having a very active life with my close-knit family. I would say I definitely ‘rose to the challenge’ and dialysed in some unusual places, including on days out to the park, during a trip to the zoo, on a cruise, and at family weddings. I also had a short spell on Automated Peroneal dialysis (APD) which was unfortunately not effective enough and I transferred to haemodialysis (HD).
Haemodialysis treatment, although different and not at home, has been manageable. I have modified my life to fit around my dialysis time and when not dialysing, my life remains busy. However, my biggest challenge has been adapting my diet.
The social aspect of eating is a big part of my Jamaican culture and family life. When I was on PD nothing was ‘off limit’ and my fluid intake was not an issue. Being on haemodialysis has changed that and I have had to modify my diet considerably.
Although I would prefer not too, I have learnt to swap different food products for those that contain less potassium and salt. I have swapped classic Jamaican cookery and choose to make nourishing casseroles instead. I also maintain a one litre fluid restriction.
I definitely miss the variety and taste of Jamaican cookery, but I know that it is logical to make the compromise. When asked what I miss the most I am unable to narrow it down to one certain dish, as I miss everything. Initially the change was difficult, but I believe we all own our decisions and if I want to continue enjoying my life, I need to avoid temptation and make sure I keep as well as possible.
My advice to others in the same circumstances would be to ask for, and accept the support from the renal dietitians, and take their advice. Some would say that I am tough on myself because I avoid the foods that I most enjoy, but the way I see it is, I have simply listened to what is best for me, drawn on my self-discipline, and with support from my family I have adapted my diet to meet my needs.
