Stories Tagged as Inherited conditions

Event: Lancashire and South Cumbria Patient Information Day

100,000 Genomes Project

The author offers insight into the 100,000 Genome study and encourages eligible individuals to take part.

Alport Syndrome

An overview of the 4th UK Alport Syndrome Information Day, bringing together families and specialists to discuss the latest research, treatments, and experiences related to Alport Syndrome.

General

A story of tragedy and triumph

A story about the development of Soliris, a groundbreaking treatment for aHUS, which has transformed patient outcomes by preventing kidney damage and offering the possibility of getting a transplant.

Patient

Stories Tagged as Inherited conditions

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Event: Lancashire and South Cumbria Patient Information Day

100,000 Genomes Project

Alport Syndrome

A story of tragedy and triumph

my first blog

Parental Dilemma

The gift of life

The Gift of Life

The Kidney Information Network (KIN)