Find out how research can benefit you
We found that being a part of research has helped us to learn more about the disease and its treatment. Most importantly it has given us opportunities to share our knowledge and make a contribution to this community.
You can be involved in research in many ways. For example, you can be a research participant – this may mean you are interviewed or complete a questionnaire. You can also shape research by being a part of a patient and public involvement (PPI) group – this means researchers ask you about your experiences which shapes the research.
Here are some ways to be involved in research
Kidney Carers Research Advisory Group
We are a group of people who look after or support those with kidney disease (often referred to as carers!). We shape research by sharing our views, experiences and knowledge with each other and the research team. The researcher leading the group is Currie Moore who is based at the University of Salford. She wants to better understand the needs of carers and ensure you have the support and information you want. We meet online to review the study’s plans and share our lived experiences.
To find out more, email Currie (c.r.moore@salford.ac.uk).
Kidney Patient Involvement Network (KPIN)
This group links kidney organisations, researchers, and people with lived experience of kidney disease. Their aim is for more patients and carers to be actively involved in advisory positions, taking part in research and service improvement projects, and on sitting on decision making panels and committees.
Kidney Research UK – Patient (and Carer) Involvement
This national charity invites family members and partners of those with kidney disease to be involved in their work – from a research network volunteer to community ambassador to a member of a lay advisory group:
