Caring for Someone on Dialysis | Baxter Renal Care this site talks about how carers can manage their change in role, their emotions and where to look for support.
Amazon also do a series of books for children you may find useful to explain things to your family, one for peritoneal dialysis, haemodialysis and transplantation.
Ready Steady Go is a transition programme for young people moving into adult care – it provides support and questions for people to take to their consultation with their doctors, but there is also information for parents and carers of young children with kidney disease.
Supporting information | infoKID – this site provides information for parents and carers of children with kidney disease.
Information to help someone manage their kidney disease – is an information pack is specifically for carers in the UK, developed by the National Kidney Federation (NKF) to provide peer support for those looking to do dialysis at home and information about kidney disease.
Counselling and Support Service – Kidney Care UK offers free counselling and support, including for carers. You will have an initial consultation and up to six 50-minute sessions. Book an initial consultation by calling them or sending an email, follow the link for their contact details and more information.
Carers Connect is a forum ran by Carers UK for any type of carer to gain support.
Join our Carers KIN group and access informal peer support
