Kidney Charities
Here is a list of different kidney charities or organisations where you may find more information and support. Carers UK Citizens Advice Diabetes UK Gift of Living Donations (GOLD) – Changing Lives IgA Nephropathy Foundation Kidney Care UK Kidney Research UK Kidneys for Life – Northwest based charity MIND National Kidney Federation National Black, Asian, […]
Get More Involved
Some people managing kidney disease, and their carers want to get more involved to influence, change and improve the quality of kidney services, research and or national policy. We need more people to get involved, we need to hear the voices from people with diverse backgrounds. The Kidney Patient Involvement Network (KPIN) – is a […]
Diet and Nutrition
Welcome to the Kidney Kitchen | Kidney Care UK -a fantastic resource now available offering great recipes for kidney patients so you no longer need to eat a bland diet (if you try any please write a blog on what you would recommend for other patients). Recipe Index | Kidney Care UK searchable links to […]
Medication Information
There are specific medications used to treat chronic kidney disease, but some medication bought over the counter at pharmacies can cause more damage than good, you need to be informed and here is some information to help. Look through these sites to better understand what you are taking and ask you pharmacist or nurse to […]
Carer and Family Resources
Caring for Someone on Dialysis | Baxter Renal Care this site talks about how carers can manage their change in role, their emotions and where to look for support. Amazon also do a series of books for children you may find useful to explain things to your family, one for peritoneal dialysis, haemodialysis and transplantation. […]
Managing Yourself – Taking Control
Taking control and helping yourself to manage your chronic kidney disease is essential, there are many things you can do which can help you stay healthy, see the sites below for more information: What you can do to help yourself with CKD – Chronic Kidney Disease Explained – simple list of things to consider which […]
Managing Symptoms
If you are struggling with different symptoms do not just put up with them, make sure you discuss any problems with your doctor or nurse, new things become available that may help you. So speak up if you get new symptoms, and/or if you have symptoms that are persisting and not resolved. There are many […]
Mental health, Counselling and Peer Support
People managing chronic kidney disease should NOT accept feeling depressed, anxious or having poor mental health, as part of their normal life. You should seek out support that suits your needs to help you overcome low mood, encourage a positive outlook, and improve your quality of life. This might include improving your physical health, needing […]
Finance, Work and Social Support
Staying in work As kidney disease progresses you may need advice and support with sustaining employment, it is important you know your employment rights. Kidney Care UK have summarised these for you – Employment rights Kidney Care UK have also developed a leaflet for you to share with your employer to help them better understand […]